The International Society of Systemic Auto-Inflammatory Diseases

ISSAID News

Register to the ISSAID Periodic Congress (Scientific Series)

It is still time to register to the ISSAID Periodic Congress, built in the form of a scientific series.

Register now and benefit:

  • from 2-4 hours of scientific eduaction per month
  • access to recorded sessions until 31st December 2021
  • networkign opportunities with colleague

Register now

Last chance to submit an abstract!

Conscious that some colleagues may need more time to submit their abstract, the steering committee has decided to extend the deadline until 15th April. Please be reminded that accepted abstracts will be published in a supplement of Pediatric Rheumatology Journal.

Submit now

Submit your abstract for the periodic congress!

Submission deadline: 31 March 2021

Delegates, who would like to present their work at the Periodic Congress, either orally or as an e-poster, are invited to submit an abstract for consideration by the Abstract Grading Committee. 

>> Read more

Update regarding COVID-19 vaccines in pediatric rheumatic patients

PRES update regarding COVID-19 vaccines in pediatric rheumatic patients

Statement endorsed by ISSAID

(Published on 30 December 2020)

 

  • The risk and morbidity of acquiring COVID-19 is relatively similar among healthy children and those with rheumatic diseases.
  • The new COVID -19 vaccines are approved by various health authorities for patients 16 years of age and older, and are recommended for pediatric rheumatic patients above those ages.
  • It is recommended to vaccinate patients 16 years of age and older with low disease activity or those in remission, who are treated with methotrexate and biologic therapies.
  • It is advised to consult your pediatric rheumatologist in order to assess your disease activity and medications before making a decision regarding vaccination.
  • It is important to establish registries regarding the efficacy and safety of COVID-19 vaccines for patients with pediatric rheumatic diseases.
  • It remains important to be vaccinated against influenza; however, the influenza vaccine should not be given together (best 2 weeks apart) from the COVID-19 vaccine.
  • Vaccine will most likely protect the patient from getting severe course of COVID-19, but it is still possible that vaccinated person could carry the virus and be contagious to others. Therefore, vaccinated patients should still be wearing masks and practicing physical distancing.

Happy New Year

The ISSAID Steering Committee would like to share its best wishes for the new year. May 2021 bring you good health, joy and success.

We are excited to start this year with new projects:

  • the ISSAID Winter School
  • ISSAID 2021 periodic congress
  • continuation of webinar series

Stay tuned for more details!

ISSAID webinar series

ISSAID is pleased to launch it 2020 webinar series aimed at doctors, health professionals who have an interest in systemic auto-inflammatory diseases.

 

Further information here.

ISSAID recommendations for COVID-19

(Adapted from the EULAR recommendations)

1. Be updated and follow the individual country’s Ministry of Health/National public health care body’s recommendations.

 

2. Ensure you meticulously follow all hygiene recommendations. Please note that the new coronavirus may remain viable for hour or days on many surfaces such as handles, doorknobs, light switches, mobile phones, computer keyboards, remotes, keys, elevator buttons, toilets, sinks, tables, hard-backed chairs, etc.
Simple measures are likely to help to preserve your health and that of your family and friends:

  • Wash your hands very regularly for at least 20 seconds using soap and water. Dry hands thoroughly afterwards.
  • Try to avoid touching your face.
  • Coughing or sneezing should be into an elbow or tissue paper and the latter should be discarded safely.
  • Use disposable tissues.
  • Wear a mask when you are ill; if there are no symptoms it is not necessary to wear a mask. The mask cannot completely prevent virus transmission, but it is a good reminder of not touching your face and serves to warn others that you may not be well.
  • Practice sensible social distancing especially from people who appear to be ill, e.g. coughing or sneezing. One meter is recommended.
  • We should greet each other without shaking hands, and avoid hugs

3. At the moment for all patients with Autoinflammatory diseases on medication, we recommend to continue all therapies as usual.

 

4. Don’t stop your medications including colchicine and biologics, without consulting your doctor. This may cause a flare of your autoinflammatory disease.

 

5. If you are on corticosteroid therapy - consult your doctor regarding possible dose adjustment.


6. Patients in isolation or quarantine (without symptoms) should continue therapy as usual.


7. In case of fever and suspicion of infectious diseases follow your national advice for access to health care and to test for Covid-19. In the meantime, continue Colchicine and, if taking biologics, get in touch with your treating physician for guidance.


8. In the event that you have a routine visit consider to ask your primary care physician, or referral doctor  if this is essential, or can be safely delayed, or if it can be performed by telephone or some other remote device. This facility may vary in availability across different health care settings.


9. For all individuals, including patients with pediatric rheumatic diseases. Scrupulously maintain all the measure of social distance.


10. Wishing you good health and back to regular track soon.

See also EULAR website - EULAR website https://www.eular.org/eular_guidance_for_patients_covid19_outbreak.cfm

Summer School Postponed

Due to the current COVID-19 situation, the first ISSAID Summer School, which was set to take place from 29 June to 1 July in Italy, will be postponed to a later date.

All young doctors or trainees who are still interested in attending the Summer School, are welcome to review the general themes and program outlines below. 

Expand your knowledge through cases presented by attendees and discussed by faculty members, with a focus on the main take-home messages for each case. The faculty will also lead Interactive cases, which include tricky presentations and differential diagnoses.

Workshops will focus on the interpretation of genetic tests, approaches to gene findings, evaluation of disease activity, and management issues.

A newly proposed date, city, and application deadline will be announced soon.

Welcome to our news co-opted steering committee member!

Karen Durrant has been co-opted to sit with the steering committee as patients advocate.

She is a Registered Nurse specializing in pediatrics, with a background in clinical research and nursing instruction, in addition to inpatient nursing and critical care. Karen founded, and currently leads the Autoinflammatory Alliance a non-profit organization as an advocate for patients with rare autoinflammatory diseases. In this role she also has developed a number of educational materials, and collaborates on projects with expert doctors worldwide to help improve awareness, care and treatment for autoinflammatory diseases.

Announcement of the upcoming ISSAID Summer School

ISSAID is organizing its first summer school which will be held in Italy from 29 June to 1 July. It is aimed at young doctors or trainees. Candidates who wish to attend should submit their application before 31 March 2020.

Further information will be announced soon.