The International Society of Systemic Auto-Inflammatory Diseases

ISSAID News

ISSAID webinar series

ISSAID is pleased to launch it 2020 webinar series aimed at doctors, health professionals who have an interest in systemic auto-inflammatory diseases.

 

Further information here.

ISSAID recommendations for COVID-19

(Adapted from the EULAR recommendations)

1. Be updated and follow the individual country’s Ministry of Health/National public health care body’s recommendations.

 

2. Ensure you meticulously follow all hygiene recommendations. Please note that the new coronavirus may remain viable for hour or days on many surfaces such as handles, doorknobs, light switches, mobile phones, computer keyboards, remotes, keys, elevator buttons, toilets, sinks, tables, hard-backed chairs, etc.
Simple measures are likely to help to preserve your health and that of your family and friends:

  • Wash your hands very regularly for at least 20 seconds using soap and water. Dry hands thoroughly afterwards.
  • Try to avoid touching your face.
  • Coughing or sneezing should be into an elbow or tissue paper and the latter should be discarded safely.
  • Use disposable tissues.
  • Wear a mask when you are ill; if there are no symptoms it is not necessary to wear a mask. The mask cannot completely prevent virus transmission, but it is a good reminder of not touching your face and serves to warn others that you may not be well.
  • Practice sensible social distancing especially from people who appear to be ill, e.g. coughing or sneezing. One meter is recommended.
  • We should greet each other without shaking hands, and avoid hugs

3. At the moment for all patients with Autoinflammatory diseases on medication, we recommend to continue all therapies as usual.

 

4. Don’t stop your medications including colchicine and biologics, without consulting your doctor. This may cause a flare of your autoinflammatory disease.

 

5. If you are on corticosteroid therapy - consult your doctor regarding possible dose adjustment.


6. Patients in isolation or quarantine (without symptoms) should continue therapy as usual.


7. In case of fever and suspicion of infectious diseases follow your national advice for access to health care and to test for Covid-19. In the meantime, continue Colchicine and, if taking biologics, get in touch with your treating physician for guidance.


8. In the event that you have a routine visit consider to ask your primary care physician, or referral doctor  if this is essential, or can be safely delayed, or if it can be performed by telephone or some other remote device. This facility may vary in availability across different health care settings.


9. For all individuals, including patients with pediatric rheumatic diseases. Scrupulously maintain all the measure of social distance.


10. Wishing you good health and back to regular track soon.

See also EULAR website - EULAR website https://www.eular.org/eular_guidance_for_patients_covid19_outbreak.cfm

Summer School Postponed

Due to the current COVID-19 situation, the first ISSAID Summer School, which was set to take place from 29 June to 1 July in Italy, will be postponed to a later date.

All young doctors or trainees who are still interested in attending the Summer School, are welcome to review the general themes and program outlines below. 

Expand your knowledge through cases presented by attendees and discussed by faculty members, with a focus on the main take-home messages for each case. The faculty will also lead Interactive cases, which include tricky presentations and differential diagnoses.

Workshops will focus on the interpretation of genetic tests, approaches to gene findings, evaluation of disease activity, and management issues.

A newly proposed date, city, and application deadline will be announced soon.

Welcome to our news co-opted steering committee member!

Karen Durrant has been co-opted to sit with the steering committee as patients advocate.

She is a Registered Nurse specializing in pediatrics, with a background in clinical research and nursing instruction, in addition to inpatient nursing and critical care. Karen founded, and currently leads the Autoinflammatory Alliance a non-profit organization as an advocate for patients with rare autoinflammatory diseases. In this role she also has developed a number of educational materials, and collaborates on projects with expert doctors worldwide to help improve awareness, care and treatment for autoinflammatory diseases.

Announcement of the upcoming ISSAID Summer School

ISSAID is organizing its first summer school which will be held in Italy from 29 June to 1 July. It is aimed at young doctors or trainees. Candidates who wish to attend should submit their application before 31 March 2020.

Further information will be announced soon.