Periodic Congress



Upcoming sessions


June 2021

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Wednesday 23 June 2021 – 17:00 – 19:00

Session 3 The clinical presentation and treatment of MIS-C around the world
  Moderators: Jasmine Kuemmerle-Deschner (DE), Joost Frenkel (NL)
17:00 The kaleidoscope of MIS-C
Angelo Ravelli (IT)
17:20 O03 - Long-term cardiac outcome in patients with multisystem inflammatory syndrome in children (MIS-C)
Fiammetta Zunica (IT)
17:30 Panel Discussion MIS-C: News from the World

Isabelle Koné-Paut (FR): MIS-C in Europe
Maria Cecilia Poli Harlowe (CL): MIS-C in South America
Kate Webb (ZA): MIS-C in Africa
Suma Balan (IN): MIS-C in India

Fatma Dedeoglu (US): MIS-C in North America


July 2021

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Wednesday 7 July 2021 – 17:00 – 19:00

Session 4 Pulmonary involvement in autoinflammatory diseases (SAIDs)
  Moderators: Seza Ozen (TR), Paul Brogan (UK)
17:00 Interferonopathies
Raphaela Goldbach-Mansky (US)
17:20 Systemic Onset Juvenile Idiopathic Artiritis
Bas Vastert (NL)
17:40 Discussion
NOVARTIS Symposium Novel Approaches to Personalized Patient Care in Still’s Disease

Welcome and Introduction
Carine Wouters, MD, PhD (BE)


Biomarkers and Their Sense or Nonsense in the Management of Still’s Disease
Lorenzo Dagna, MD (IT)

18:20 Digital Tools for the Management of Rare Autoinflammatory Diseases 
Johannes Knitza, MD, MHBA (DE)
18:35 The Transition from Paediatric to Adult Care: What Can We Learn From Experience with JIA? 
Carine Wouters, MD, PhD (BE)
18:50 “Ask the Faculty” and Take-Home Messages 
Carine Wouters, MD, PhD (BE), Lorenzo Dagna, MD (IT) and Johannes Knitza, MD, MHBA (DE)

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Wednesday 21 July 2021 – 17:00 – 19:00

Session 5 Autoinflammation in COVID-19
  Moderators: Isabelle Koné-Paut (FR), Marco Gattorno (IT)
17:00 Inflammatory cell death (pyroptosis) in SARS-CoV-2 infection
Judy Lieberman (US)
17:20 Genetic and immune determinants of response to SARS-CoV-2
Luigi Notarangelo (US)
17:40 The pathogenesis and clinical spectrum of MIS-C
Lauren Henderson (US)
18:00 O04 - SARS-COV2 ORF3A protein drives inflammation in COVID-19 through NLRP3 inflammasome activation
Stefano Volpi (IT)
18:10 Discussion
NOVARTIS Meet the Expert Meet the experts: Stills’ disease and its mimics
18:30 New data on biomarkers in AOSD - does it help for diagnosis and prognosis?
Eugen Feist, Germany
18:40 Still’s disease – overlays to monogenetic diseases?
Sinisa Savic, United Kingdom
18:50 Q&A


September 2021

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Wednesday 8 September 2021 – 17:00 – 19:00

Session 6 Hematological aspects of autoinflammation
  Moderators: Quing Zhou (CN)
17:00 Clinical lecture: myelodysplastic syndrome, Schinzel, VEXAS
Sinisa Savic (UK)
17:20 Clinical aspects of Ripk1 autoinflammatory disease (CRIA syndrome)
Deborah Stone (US)
17:40 Pathogenic basis of Ripk1 autoinflammatory disease
Najoua Lalaoui (AU)
18:00 O05 - Defining clinical and genetic hallmarks of VEXAS syndrome
Daniela Ospina Cardona (US)
18:10 O06 - Adult-onset autoinflammation caused by somatic mutations in UBA1: a Dutch case series of VEXAS patients
Caspar Ivan van der Made (NL)
18:20 Discussion

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Wednesday 22 September 2021 – 17:00 – 19:00

Session 7 Metabolism and Autoinflammation
  Moderators: Scott Canna (US)
17:00 The clinical spectrum of LACC1-disorders
Sulaiman Al-Mayouf (SA)
17:20 Famin/LACC1 
Alexandre Belot (FR)
17:40 IL-1 blockade in heart disease
Antonio Abbate (US)
18:00 O07 - Short-term follow-up results of children with Familial Mediterranean Fever after cessation of Canakinumab
Hafize Emine Sönmez (TR)

O08 - Traditional laboratory parameters and new biomarkers in Macrophage Activation Syndrome (MAS) and Secondary Hemophagocytic Lymphohistiocytosis (SHLH)
Arianna De Matteis (IT)

18:20 Discussion


October 2021

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Wednesday 6 October 2021 – 17:00 – 19:00

Session 8 Enzymes bridging the gap between genes, autoimmunity and inflammation
  Moderators: Marie-Louise Frémond (FR), Stefano Volpi (IT)
17:00 A clinical overview on TREX1 and DNASE2
Yannick Crow (UK)
17:20 Bridging monogenic diseases with autoimmunity
Boris Reizis (US)
17:40 Linking plasma DNA profiles with nucleases
Dennis Lo (HK)
18:00 O09 - Dissecting netosis in adenosine deaminase 2 deficiency (DADA2) patients
Francesca Schena (IT)
18:10 Oral communication 2
18:20 Discussion

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Wednesday 20 October 2021 – 17:00 – 19:00

Session 9 Approaches to genomic mutation detection in SAID
  Moderator: Isabelle Touitou (FR)
17:00 Genotype-driven, phenotype-neutral approach; detection of VEXAS syndrome
David Beck (US)
17:20 Phenotype-driven genomic diagnostics; LIRICAL
Peter Robinson (US)
17:40 Human phenotype ontology and its importance in autoinflammation
Marielle van Gijn (NL)
18:00 O10  - Next generation sequencing based multiplex long-range PCR for routine genotyping of autoinflammatory disorders
Erkan Demirkaya (CA)
18:10 Oral communication 2
18:20 Discussion


November 2021

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Wednesday 3 November 2021 – 17:00 – 19:00

Session 10 New therapies in autoinflammation
  Moderator: Scott Canna (US)
17:00 General lecture: an update on treatment
Helen Lachmann (UK)
17:20 New approaches to inhibition of autoinflammation for inflammasomes inhibition
Luke O'Neill (IE)
17:40 Blocking the IFN pathway
Andrea Ablasser (CH)
18:00 O11 - Gene therapy for IL-1-mediated systemic autoinflammatory diseases
Mariasilvia Colantuoni (IT)
18:10 O12 - Application of systems biology-based in silico tools to optimize treatment strategy in Still’s disease
Mireia Coma (ES)
18:20 Discussion

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Wednesday 17 November 2021 – 17:00 – 19:00

Session 11 New guidelines for autoinflammatory diseases
  Moderators: Raphaela Goldbach-Mansky (US), Erkan Demirkaya (CA)
17:00 Interferonopathies
17:30 IL-1 mediated diseases
18:00 HLH-MAS
18:30 Discussion


December 2021

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Wednesday 1 December 2021 – 17:00 – 19:00

Session 12 New genetic causes of SAID in 2021
  Moderators: Marco Gattorno (IT), Helen Lachmann (UK)
17:00 Overview of genetic cause of SAID - 2021 update
Ivona Aksentijevich (US)
17:20 Oral communication 1
17:30 Oral communication 2
17:40 Oral communication 3
17:50 Oral communication 4
18:00 Oral communication 5
18:10 Oral communication 6
18:20 Discussion




Past sessions available on-demand


May 2021
Register & Watch recording

Wednesday 26 May 2021 – 17:00 – 19:00

  Moderators: Marco Gattorno (IT), Helen Lachmann (UK)
Opening session: Opening Lecture
17:00 The expansion of the autoinflammatory universe
Dan Kastner (US)
Session 1 (auto)inflammatory consequences of actin dysregulation
17:20 Clinical features of (auto)inflammatory consequences of actin dysregulation
Paul Brogan (UK)
17:40 Mechanistic insights: autoinflammation and actin
Kaan Boztug (AT)
18:00 O01 - The possible effect of MIR-30E-3P which targets IL-1β in the pathogenesis of systemic autoinflammatory diseases
Tayfun Hi̇lmi̇ Akbaba (TR)
18:10  O02 - Number of episodes can be used as a disease activity measure in Familial Mediterranean Fever
David Piskin (CA)
18:20 Discussion


June 2021
Register & Watch recording

Wednesday 9 June 2021 – 17:00 – 19:00

Session 2 Diagnosis and management of non-genetically determined recurrent fevers
  Moderators: Amita Arggawal (IN), Philip Hashkes (IL)

State-of-the art lecture: Everything you need to know about PFAPA in 2021
Kaplana Manthiram (US)

17:20 Round table discussion:  How do I manage patients with recurrent fevers of unknown origin  (PFAPA, SURF, etc)
Michael Hofer (CH): How do I make diagnosis?
Lori Broderick (US): Is SURF a clinical entity?
Sophie Georgin-Lavialle (FR): Undefined recurrent fevers in adults
Saskya Angevare (NL) and Karen Durrant (US): Patients perspectives
View full programme Familial Mediterranean Fever: Contextualizing anti IL-1 Therapy to Achieve and Sustain Therapy Goals

Welcome and opening remarks
The roadmap to optimizing FMF outcomes with anti IL-1 therpay?
Marco Gattorno (IT)

  FMF treatment goals
Meeting and sustaining patient need
Eldad Ben-Chetrit (IL)
  What are the treatment expectations for a patient with FMF
Considering a holistic approach to achieve quality of life goals?
Veronique Hentgen (FR)
  Anti IL-1 therapy treatment paradigms
Marco Gattorno (IL)
  Live panel discussion: Summing it up

About us

IssaidThe International Society of Systemic Auto-Inflammatory Diseases (ISSAID) raise awareness, catalyse basic research and promote scientific and clinical knowledge on all aspects of systemic auto-inflammatory diseases.

Contact Information

ISSAID 2021 c/o MCI Geneva
9, rue du Pré-Bouvier
1242, Satigny, Geneva


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